Good websites

F.N.D. Hope - Functional Neurological Disorder. This is the US and UK registered organisation that is a patient advocate for all somatic symptom sufferers. This website holds a lot of information for both patients, carers and medical practitioners.

http://www.fndhope.org

Functional and Dissociative Neurological symptoms : a patient's guide.  This site, set up by the world's leading authority on Functional Neurological Disorders, neurologist Dr Jon Stone, is a must read by patients and physicians alike.

http://www.neurosymptoms.org

Mental Health links in Australia

https://www.mja.com.au/search/site/somatoform

A good search engine for articles on Somatoform Disorders

http://online.sagepub.com                               

Invitation

Here is a link to the world's largest online support group for sufferers of FND, CD, Functional Dystonia and all other somatoform  and/or Functional Disorders. This Facebook group has over 1,000 members, and is tremendously supportive for patients and their carers alike. 

This group is called Functional Neurological/Conversion Disorder/fndhope.org  

There are also numerous other Facebook groups if you would prefer to belong to a smaller group, including a FND Carers groups and specific focus groups. 

https://www.facebook.com/groups/446141998734230/

You are invited to join a Yahoo list of fellow sufferers and their families. Lists like this can provide a really warm and supportive environment to help you as you come to an understanding of this condition. They will help you to see that you are not alone, and will also help you to see that these disorders can be far reaching in their effects on the sufferers and their families. We look forward to seeing you here.

http://health.groups.yahoo.com/group/somatoform_and_conversionsupport/

Changes to the Definition of Somatoform Disorders in DSM5


The American Psychiatric Society produce a definitive manual (DSM) describing all mental health conditions that they are aware of. The latest DSM, DSM5, has made significant changes to the way Somatoform Disorders are described, categorised and therefore thought about.

They re-labelled Conversion Disorder to 'Conversion Disorder (Functional Neurological Symptom Disorder)' and removed any reference to psychological factors because they said that it was confusing, unreliable and subjective, and can't be proved one way or another. There appears to be no basis whatever for having included in in the definition in the first place. (They removed these two comments from their website some time between the release of the second draft of DSM5 in December 2012 and the final release of DSM5 in May 2013.)

The Second Draft of the DSM5 said that 'there is no evidence that feigning is more common in patients with possible conversion disorder than with other mental disorders. Highlighting it for conversion alone is unnecessarily stigmatising and may be detrimental to the physician-patient relationship.'

DSM5 introduced the concept of Somatic Symptom Disorder, a very highly contentious concept that has been hotly disputed since it's sudden appearance in the final release of DSM5. This new label is for anyone with or without a real medically diagnosed disorder or not, who is unduly stressed and worried about any bodily symptoms for a period of 6 months or more, whether the symptoms are their own or someone else's. 

This disorder is TOTALLY UNRELATED to Somatoform Disorders. It is basically someone worrying unduly about a medical problem, including being unduly worried about symptoms of cancer, MS, Diabetes or a brain tumour! It has been thoroughly challenged by many medical practitioners because it provides a simple way for legitimising lazy doctoring, and dismissing any of the 20% of the population who have any of the 6,800 recognised Rare Disorders as being psychiatrically or emotionally disturbed.

Here is a summary of these changes. See page 10.

http://www.dsm5.org/Documents/changes%20from%20dsm-iv-tr%20to%20dsm-5.pdf

Additional Links

If you have any links you would like to see included here, or if you have any suggestions for changes or improvements to this site, please contact vivienne@somatoformaustralia.org

I am a sufferer of Somatisation Disorder and live in Brisbane, Australia. Over time, I hope to make contact with more people who have a similar condition to mine.